Monday, November 26, 2012

Video: Disorder causes lawyer to sleep up to 18 hours a day



>> introduced you to a teenager with a condition that would cause her to sleep for weeks, even months on end. well, this morning you're going to meet a lawyer who suffers from a different sleep disorder , one that can be just as debilitating but one with hope. gabe gutierrez is here with that story, good morning, gabe.

>> reporter: researchers are hoping to revolutionize the treatment of this major sleeping disorder that often affects women, but for one patient it's also a race against time to keep getting the medicine that changed her life.

>> my bed was my health. it was everything.

>> reporter: for everything sleep was an obsess.

>> like an addiction. would i hit a point in the day where i thought if i don't go to sleep right now i will literally not survive.

>> reporter: she was no slacker working at a major law firm in atlanta after graduating from princeton and duke, but anna 's life was falling apart. sleeping up to 18 hours the a day but never feeling rested.

>> my rock bottom was sleeping for 53 hours. i felt helpless.

>> reporter: so she took a leave of absence and headed to emory university 's sleep lab where doctors checked everything. it wasn't a thyroid problem or depression. doctors discovered an entirely new cause, something they found in 31 other patients like anna . their research just published in the medical journal "science translational medicine ."

>> the body is producing a substance that acts very much like a sedative.

>> reporter: that sedative, doctors say acts like anesthesia. in tests, patient response times are as slow as people who are legally drunk and this disorder could affect 1 in 800 people. to treat it doctors are using a drug that's normally used to help surgery patients wake up from anesthesia. vicky rush got the iv drug once during emory's research.

>> the fog was lifted. you just felt like you were really awake.

>> reporter: but so far anna sumner is the only patient taking the medicine daily in bill form thanks to a research donation from a drug company .

>> i was existing before treatment, but i wasn't living.

>> reporter: she's able to do tasks she was never able to do before but her medicine runs out next year.

>> the thought is almost terrorizing.

>> reporter: now she's on a mission to help the drug industry mass produce this drug.

>> it gives me the luxury of life.

>> reporter: a luxury she never thought possible, not just sleep

but rest: doctors say the drug is the only effective treatment of the disorder which is so newly discovered is t doesn't even have a name yet. savannah.

>> gabe gutierrez in atlanta, thank you.

Source: http://video.today.msnbc.msn.com/today/49963811/

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